Unlocking innovation and access for rare disease patients in Europe

Memo

To mark the opening of Rare Disease week, join this high-level policy debate that will address the future of European collaboration on rare diseases, to reimagine and transform rare disease policy through access, awareness, and innovation. We will bring together the European rare disease community to tackle this area of great unmet medical need, gain insights on the impact that policy decisions have on improving early diagnosis and the quality of lives of people affected by rare diseases. Join us for this virtual series of sessions to examine the most critical issues in rare disease in Europe from different perspectives including policy-makers, innovators, industry, medical professionals and patient organisations, who are leading the conversation around the future of European collaboration on rare diseases. Gain thought-provoking insights from leaders, including:• Stella Kyriakides, European Commissioner for Health and Food Safety• Dolors Montserrat, Member of the European Parliament• Tomislav Sokol, Member of the European Parliament• Yann Le Cam, CEO, EURORDIS• Nathalie Moll, Director General, EFPIA• Jana Popova, Patient Advocate• Bertalan Mesko, The Medical Futurist• Johanna Friedl-Naderer, President Europe, Canada and Partner Markets, Biogen• and many more… Register for free for this thought-provoking event, a Biogen initiative, in collaboration with Reuters Events and EU40. Time: 2:00 pm - 3:45 pm Speakers: Stella Kyriakides, European Commissioner for Health and Food Safety, Dolors Montserrat, Member of the European Parliament, Tomislav Sokol, Member of the European Parliament, Yann Le Cam, CEO, EURORDIS, Nathalie Moll, Director General, EFPIA, Bertalan Mesko, The Medical Futurist, Avril Daly, CEO, Retina International, Johanna Friedl-Naderer, President Europe, Canada and Partner Markets, Biogen, Jana Popova, Patient Advocate, Orla Hardiman, Professor of Neurology, Trinity Biomedical Sciences Institute